Arteriovenous Malformation by AVM Awareness Project
Video URL: http://inked.pw/videoavm
Vimeo: https://vimeo.com/avmalformation
Website: http://avmalformation.org
Facebook: http://facebook.com/avmalformation
Twitter: http://twitter.com/avmalformation
Help spread Arteriovenous Malformation (AVM) and Aneurysm Awareness!
So it was yesterday, 2 years ago, that my life was completely changed.
Thank you, to everyone who has supported me for the past 2 years, making this painful journey bearable.
The world hasn’t gotten rid of me just yet!
#AneurysmAwareness Saves Lives
A “Life Track” created for class.
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Spreading #AneurysmAwareness, One sticker at a time…. (via Flickr)
Stickers available at the #AneurysmAwareness Project
Come help us spread #AneurysmAwareness, 1 sticker at a time!
All proceeds go to helping the #AneurysmAwareness Project promote awareness and provide support and resources to patients and their families via AVMalformation.Org.
Come check them out HERE!
My visual reminders.
#Live & #Hope.
You can do it.
I can do it.
We will LIVE.
We will get through this.
Have HOPE.
I’m really excited for this…
It’ll take a lot of work, time, and dedication, but I’m excited.
I’ll have to get healthier, too, so I can drive and do everything that I’ll be responsible for!
Big thanks to all of you who took part in the #AneurysmAwareness Project’s sticker giveaway contest!
The winners were drawn out of the people who reblogged the post, using Random.Org, and the winners are:
2: panicking
I have sent both of you an Ask, so I hope to receive an e-mail from you both ASAP so I can mail them out! :)
Thanks again, everyone, and I hope you will continue to support our project!
(We also now have a Fundraiser for #AneurysmAwareness Project, if you’d be so kind to check it out! Even sharing the #AneurysmAwareness Project or Fundraiser’s links would be GREATLY appreciated, since our goal is, ultimately, awareness about aneurysms and Arteriovenous Malformation.)
Remember to come and LIKE our Facebook Page! :)
Today was an AVMSurvivors Luncheon & Meet-Up, hosted by a friend and fellow AVM Survivor in the area. It was great to catch up and chat with fellow survivors, and swap stories and advices.
My best friend went with me, and we brought along some sweets and my stickers, and I got to pass them out, which was nice as well. :)
Speaking of, the #AneurysmAwareness Project now has a fundraiser, as well as a domain at AneurysmAwareness.Com, and the contest for free stickers end TOMORROW (3/31)!!
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Aneurysm Awareness Poster via http://flic.kr/p/e5rVGD
#AneurysmAwareness.com
AVMalformation.Org | Facebook.com/AVMalformation
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Hi! My name is Stephanie. I’m 18 years old. I was born with several chronic diseases and deformities in my spine and brain. I’m in desperate need of spinal surgery. I live in Rhode Island, but the closest place to where I live that the surgery is performed is in Maryland. My health insurance covers most of it, but there’s still several thousand dollars I need to pay out of pocket for not only the cost of the surgery, hospital stay, and medications; but for travel expenses, and for my parents to stay in a hotel close by.
I have a tethered spinal cord, Chiari Malformation, Kyphosis, and Syringomyelia (all shown in the MRIs above), along with Ehlers-Danlos Syndrome, systemic Reflex Sympathetic Dystrophy, Postural Orthostatic Tachycardia, dysautonomia, and Gasteoparesis.
You can click on any of the above links to learn more about the health conditions I have.
I need surgery as soon as possible. The doctors at the hospital in Maryland want me to have it next month. If I am unable to get this surgery, I could face complications such as becoming paralyzed or crippled due to the extent, severity, and prognosis of my conditions.
ANYTHING HELPS. It would mean the world to me if you even donated a dollar. It really would.
If you do, PLEASE let me know so I can send you a personal thank you letter.
If you can’t, I want to sincerely thank you for reading this, and it would mean a lot to me if you reblogged this post, not only for donations, but to spread awareness about my conditions.
If you have any questions, want to talk to me, etc.:
Write in my ask box
Friend me on Facebook
send me an email: stephaniefcarroll@gmail.comThank you so so so much <3
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I want to be thoroughly used up
when I die, for
the harder I work,
the more I live.
I rejoice in life for its own sake.
Life is no ‘brief candle’ to me.
It is a sort of splendid torch
which I have got hold of
for the moment;
and I want to make it burn
as brightly as possible
before handing it on
to future generations.
George Bernard Shaw
What was going to be a last meeting between a friend from middle school and I tomorrow (because she’s moving to Hawaii next week) turned into an impromptu middle school reunion with the closest friends I had in middle school that are still in the area.
One is an artist like she wanted to be since elementary school (was my best friend then, still my best friend). The one moving away is an author like she’s wanted to be for as long as I’ve known her (her 1st book is coming out this month). Another friend is going to start med school next semester to become a D.O.
One of the girls who isn’t around is going to Stanford for her masters, another friend is studying to work for NASA at Wash U graduate school.
Everyone seems to be going for their dreams, or reached them, and I’m really happy for them. I’ve had set backs and my “plan of action” for life has changed, but I’m glad I’m still moving forward. Just a reflection that I’m still moving forward, even if it’s at a snail’s pace.
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Seems like I managed to do SOMETHING right for once!
Come LIKE AVMalformation.Org on Facebook, and help spread Aneurysm Awareness!
♞ AVMalformation.Org → 
